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Cleft Lip

Cleft Lip

Topic Overview

What is cleft lip?

Cleft lip is a treatable birth defect. It happens when the tissues of the upper jaw and nose don't join as expected during fetal development. This causes a split (cleft) in the lip.

A cleft lip may be complete or incomplete . With either type, it usually only involves one side of the upper lip and rarely occurs in the lower lip. Cleft lip often occurs with cleft palate . Cleft palate and cleft lip are the most common birth defects of the head and neck.

A cleft lip usually doesn't cause health problems. Surgery can be done to fix the split and improve the appearance of the mouth and nose.

What causes cleft lip?

Doctors aren't sure what causes it. But your baby may be more likely to have cleft lip if:

  • You use certain medicines while you're pregnant.
  • You use alcohol or illegal drugs while you're pregnant.
  • You or a household member smokes while you're pregnant.
  • You are exposed to radiation or infections while you're pregnant.
  • You or your baby's father have a family history of cleft lip.

It's important to take good care of yourself before and during your pregnancy so that your baby will be as healthy as possible.

People who have a family history of cleft lip may want to think about genetic counseling . It can help you understand your chances of having a child with a cleft lip.

What are the symptoms?

You'll notice a split in the baby's lip. It's easy to see right at birth.

Babies with cleft lip typically don't have any problems feeding. But babies with both cleft lip and cleft palate may have feeding problems.

How is cleft lip diagnosed?

Cleft lip is usually diagnosed at birth. Shortly after birth, the baby will have a physical exam. The doctor will look inside your baby's mouth to see whether there is also a cleft palate.

Sometimes a fetal ultrasound during pregnancy can detect a cleft lip. But an ultrasound doesn't always find the problem, so doctors don't rely on it to diagnose a cleft lip.

How is it treated?

Surgery can fix a cleft lip. Before surgery, a baby may wear a mouth support, such as a dental splint, a soft dental molding insert, or medical adhesive tape.

Most doctors suggest that surgery be done by the time a baby is 6 months old. 1 But the timing of the surgery depends on a few things, such as how severe the split is and the health of the baby.

As your child grows, he or she will probably need more than one operation. For example, if your baby's nose has an odd shape, surgery may help fix it. Your child may need other treatment, such as speech therapy if he or she has a hard time pronouncing words.

What can you do at home to help your child and yourself?

As your child grows, pay special attention to dental care and any speech problems. You can support your child's self-esteem if he or she is concerned about the scar. Explain how cleft lips form and how having one has been a part of making your child strong. This will help your child know how to answer questions from other children and adults.

Caring for your child with cleft palate can take time and patience. Seek support from friends and family. You can join a support group to meet others who are going through similar challenges.

Other Places To Get Help

Organizations

AboutFace
123 Edward Street
Suite 1003
Toronto, ON M5G 1E2
Phone: 1-800-665-FACE (1-800-665-3223)
Phone: (416) 597-2229
Fax: (416) 597-8494
Email: info@aboutface.ca
Web Address: www.aboutfaceusa.org
 

AboutFace is a nonprofit international organization that provides information, support, and other resources to people who have facial differences. The website has information on cleft palate, cleft lip, and other conditions.


American Society of Plastic Surgeons
444 East Algonquin Road
Arlington Heights, IL  60005
Phone: (847) 228-9900
Web Address: www.plasticsurgery.org
 

The American Society of Plastic Surgeons (ASPS) is the largest plastic surgery specialty organization in the world. This site has news on the latest advances and techniques of specific surgical procedures. It includes information on how to prepare for surgery, types of anesthesia used, recovery time, and average costs. You can find a qualified surgeon in your area, view before-and-after photographs, and read patient stories.


Cleft Palate Foundation
1504 East Franklin Street
Suite 102
Chapel Hill, NC  27514-2820
Phone: 1-800-24-CLEFT (1-800-242-5338)
(919) 933-9044
Email: info@cleftline.org
Web Address: www.cleftline.org
 

The Cleft Palate Foundation is a nonprofit organization that has information for children, adults, and families affected by clefts and other craniofacial birth defects. It was founded by the American Cleft Palate-Craniofacial Association, an international nonprofit group of health professionals who are involved in treatment and/or research of craniofacial conditions.

The Web site has information about treatment, feeding, dental care, speech, hearing, and more. You can call the toll-free phone number to get medical information and to find support groups.


KidsHealth for Parents, Children, and Teens
10140 Centurion Parkway North
Jacksonville, FL  32256
Phone: (904) 697-4100
Fax: (904) 697-4220
Web Address: www.kidshealth.org
 

This website is sponsored by the Nemours Foundation. It has a wide range of information about children's health, from allergies and diseases to normal growth and development (birth to adolescence). This website offers separate areas for kids, teens, and parents, each providing age-appropriate information that the child or parent can understand. You can sign up to get weekly emails about your area of interest.


March of Dimes
1275 Mamaroneck Avenue
White Plains, NY  10605
Phone: (914) 997-4488
Web Address: www.marchofdimes.com
 

The March of Dimes tries to improve the health of babies by preventing birth defects, premature birth, and early death. March of Dimes supports research, community services, education, and advocacy to save babies' lives. The organization's website has information on premature birth, birth defects, birth defects testing, pregnancy, and prenatal care.


References

Citations

  1. Porter RS, et al., eds. (2011). Congenital craniofacial and musculoskeletal abnormalities. In Merck Manual of Diagnosis and Therapy, 19th ed., pp. 2969–2975. Whitehouse Station, NJ: Merck Sharp and Dohme Corp.

Other Works Consulted

  • American College of Obstetricians and Gynecologists (2003, reaffirmed 2011). Neural tube defects. ACOG Practice Bulletin No. 44. Obstetrics and Gynecology, 102(1): 203–210.
  • Edwards SP, et al. (2007). Cleft lip and palate. In DM Laskin, AO Abubaker, eds., Oral and Maxillofacial Surgery, pp. 135–151. Chicago: Quintessence Publishing.
  • Hoffman WY (2012). Cleft lip and palate. In AK Lalwani, ed., Current Diagnosis and Treatment in Otolaryngology—Head and Neck Surgery, 3rd ed., pp. 345–361. New York: McGraw-Hill.
  • Kapp-Simon KA (2006). A brief overview of psychological issues in cleft lip and palate. In S Berkowitz, ed., Cleft Lip and Palate, 2nd ed., pp. 257–261. New York: Springer.
  • Klein U (2011). Oral medicine and dentistry. In WW Hay Jr et al., eds., Current Diagnosis and Treatment: Pediatrics, 20th ed., pp. 442–451. New York: McGraw-Hill.
  • Mossey PA, et al. (2009). Cleft lip and palate. Lancet, 374(9703): 1773–1785.
  • Rowe LD (2009). Congenital disorders of the oral cavity and lip section of Congenital anomalies of the head and neck. In JB Snow Jr, PA Wackym, eds., Ballenger's Otorhinolaryngology Head and Neck Surgery, 17th ed., pp. 835–838. Hamilton, ON: BC Decker.
  • Shi M, et al. (2007). Orofacial cleft risk is increased with maternal smoking and specific detoxification-gene variants. American Journal of Human Genetics, 80(1): 76–90.
  • Wilcox AJ, et al. (2007). Folic acid supplements and risk of facial clefts: National population based case-control study. BMJ. Published online January 26, 2007 (doi:10.1136/bmj.39079.618287.0B).
  • Wolfe SA, et al. (2006). Surgical treatment of clefts of the lip and palate from birth to age ten. In S Berkowitz, ed., Cleft Lip and Palate: Diagnosis and Management, 2nd ed., chap. 22, pp. 459–475. Berlin: Springer.

Credits

By Healthwise Staff
Primary Medical Reviewer John Pope, MD - Pediatrics
Specialist Medical Reviewer Adam David Schaffner, MD, FACS - Plastic Surgery, Otolaryngology
Last Revised January 19, 2012

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