Neurofibromatosis (NF) Care

Offering specialized care for NF Patients in Montana

The Billings Clinic Neurofibromatosis (NF) Center is the first dedicated program of its kind in Montana and the surrounding states. We provide expert care for patients with Neurofibromatosis type 1 (NF1), Neurofibromatosis type 2 (NF2), and Schwannomatosis, as well as related genetic conditions such as Tuberous Sclerosis and Von Hippel‑Lindau Syndrome.

Our comprehensive team brings together dedicated specialists to provide comprehensive, lifelong care.

The conditions we treat at the Billings Clinic Brain Neurofibromatosis Center include:

• NF1 (Neurofibromatosis type 1)
• NF2 (Neurofibromatosis type 2)
• Schwannomatosis
• Tuberous Sclerosis
• Von Hippel‑Lindau Syndrome
• Other genetic conditions affecting the brain, spine, and nerves

How we diagnose neurofibromatosis

Accurate diagnosis is essential for NF care. At Billings Clinic, we use:

• MRI and advanced imaging to detect tumors along nerves and in the brain or spine
• Genetic testing and counseling to confirm NF and related syndromes
• Biopsy and molecular analysis when needed for tumor evaluation
• Hearing and vision testing for NF2 and related conditions
• Neurological exams to monitor nerve and brain function

Neurofibromatosis treatment options

Our care plans are personalized and may include:

• Surgery to remove or reduce tumors when safe
• Radiation therapy for certain NF‑related tumors
• Medical therapies including chemotherapy and targeted drugs
• Rehabilitation services to improve mobility, speech, and daily function

Managing neurofibromatosis symptoms

We help patients live well by addressing:

• Pain and nerve irritation
• Hearing or vision changes
• Balance and mobility problems
• Cognitive or learning challenges
• Emotional and social support needs

Ongoing care

NF is a lifelong condition. We will help you navigate your care by providing:

• Regular imaging and check‑ups
• Monitoring for new or growing tumors
• Long‑term management of symptoms and side effects
• Guidance for families and caregivers

Supportive care

Our NF program includes:

• Genetic counseling for patients and families
• Psychologists and social workers for emotional support
• Palliative care specialists to improve quality of life
• Rehabilitation therapists for physical, occupational, and speech therapy

Our team

Your NF care team may include:

• Neuro‑oncologists
• Neurologists
• Medical oncologists
• Neurosurgeons
• Radiation oncologists
• Genetic counselors
• Rehabilitation specialists
• Dermatology
• Plastic surgeons
• Peripheral nerve surgeons
• Psychologists, social workers, and palliative care providers

Why choose the Billings Clinic Neurofibromatosis Center?

• First dedicated NF center in Montana
• Multidisciplinary team with expertise in NF1, NF2, and Schwannomatosis
• Access to national NF networks and clinical trials
• Comprehensive care from diagnosis through lifelong management
• Patient‑centered approach that emphasizes quality of life